Version: 1.0.0 | Published: 5 May 2025 | Updated: 23 days ago
Congenital Conditions and Rare Diseases Registration and Information Service for Scotland (CARDRISS)
Dataset
Summary
Citation:
CITATION INCOMPLETE
Documentation
Description:
Babies with a condition are included if the pregnancy is live born and suspected and/or diagnosed within their first year; a spontaneous still birth at 24 weeks and over; miscarriage at 23 weeks and under or a termination of pregnancy at any gestation.
The register includes babies from pregnancies ending in January 2021 onwards, where the baby meets this inclusion criteria. The register will be extended in the future to also collect and hold information on other rare diseases.
Coverage
Spatial
Spatial Coverage:
United Kingdom Scotland
Temporal
Start Date:
01 January 2021
Frequency:
Annual
Provenance
Source:
EPR
Purpose:
Disease registry
Access and Governance
Usage
Condition of Access:
General research use
Condition of Use:
- Project-specific restrictions
- Not for profit use
Access
Access Service:
Scottish National Safe Haven / Trusted Research Environment: https://publichealthscotland.scot/services/data-research-and-innovation-services/electronic-data-research-and-innovation-service-edris/national-safe-haven-nsh/
Jurisdictions:
UK
Data Controller:
Public Health Scotland
Access Request Cost:
Data Processor:
Public Health Scotland
Format and Standards
Languages:
en
Formats:
text/csv
Origin
Name:
Scottish Health Data