Version: 1.0.0 | Published: 8 Oct 2024 | Updated: 556 days ago
Documentation
Associated Media:
https://saildatabank.com/about-us/
https://popdatasci.swan.ac.uk/centres-of-excellence/sail/
https://saildatabank.com/
https://docs.hiru.swan.ac.uk/display/SATP/WCSU+-+Welsh+Cancer+Intelligence+and+Surveillance+Unit
https://performanceandimprovement.nhs.wales/functions/networks-and-planning/cancer/patient-hub/wales-cancer-patient-experience-survey-results/
Description:
The Welsh Cancer Intelligence & Surveillance Unit (WCISU) is the National Cancer Registry for Wales and its primary role is to record, store and report on all incidence of cancer for the resident population of Wales wherever they are treated. Cancer registration in Wales began almost five decades ago and today’s electronic database which holds records going back to 1972 contains in the region of 686,000 records.
WCISU collects data about occurrences of cancer in Welsh residents via direct or indirect submissions from Welsh Hospitals.
Staging of malignant melanoma (ICD 10 code C43), breast (C50), colorectal (C18-C20) and cervix (C53) started in 2001 since this was when we started receiving pathological information. Staging for all other cancers started in 2010.
Treatment information started in 1995.
Coverage
Spatial
Spatial Coverage:
United Kingdom,Wales
Temporal
Start Date:
01 January 2021
Frequency:
Annual
Provenance
Source:
EPR
Purpose:
Research cohort
Collection Situation:
Primary care - Clinic
Access and Governance
Usage
Condition of Access:
- General research use
- Research-specific restrictions
Condition of Use:
Project-specific restrictions
Resource Creator:
Welsh Cancer Intelligence and Surveillance Unit (WCISU) which is a part of
Public Health Wales (PHW)
Access
Access Service:
The SAIL Databank is powered by the UK Secure e-Research Platform (UKSeRP). Following approval through safeguard processes, access to project-specific data within the secure environment is permitted using two-factor authentication.
Jurisdictions:
GB
Data Controller:
Digital Health and Care Wales (DHCW)
Access Request Cost:
Data provision is free from SAIL. Overall project costing depends on the number
of people that require access to the SAIL Gateway, the activities that SAIL
needs to complete (e.g. loading non-standard datasets), data refreshes,
analytical work required, disclosure control process, and special case
technological requirements.
Data Processor:
SAIL Databank
Format and Standards
Languages:
en
Formats:
SQL database table
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Events
The survey was conducted by IQVIA in 2021, on behalf of the Cancer Network (now NHS Wales National Cancer Team) and Macmillan Cancer Support.
714794
Welsh Cancer Neoplasm and Treatment Events
19 July 2021