ADR Metadata Catalogue

ADR  > Born in Wales Survey (BIWS) @ 1800

https://centreforpopulationhealth.org/projects/born-in-wales/https://healthandcareresearchwales.org/born-wales-study-survey-expectant-parents

The Born in Wales project links prospectively collected parental survey data with routine electronic health and administrative records. Mothers, partners, and same-sex couples complete surveys during pregnancy and follow-up periods focusing on physical and mental health, lifestyle, workplace environments, and maternity service experiences. Survey insights are securely linked within a Trusted Research Environment (TRE) to longitudinal databases including maternal, neonatal, child health, primary care, and educational attainment records.

SAIL Databank

How old are your other children (please separate each child's age by a comma). E.g.  2, 4 and 8

AGE_OTHER_CHILDREN

WECC4_20221216

How often do you have a drink containing alcohol?

ALCOHOL

Date when the data made available in SAIL i.e. date of loadin

AVAIL_FROM_DT

Have you had any periods of bad stress in your pregnancy ?

BAD_STRESS

COVID_VACCINE

CURRENTLY_WORKING

Cycling, including cycling to work and during leisure time

CYCLING

DEATH_OF_SOMEONE

DO_YOU_DRINK_ALCOHOL

DO_YOU_SMOKE

EASILY_ANNOYED_OR_IRRITABLE

During this time did you have someone who could support you emotional or financially

EMOTIONAL_OR_FINANCIAL_SUPPORT

ETHNIC_GROUP

Have you had symptoms that are associated with COVID19 (fever, dry cough, loss of taste or smell, fatigue, muscle pain)?

EVENT_RELATED_TO_CORONAVIRUS

EXPECTED_BIRTH_DATE

Feeling afraid as if something awful might happen?

FEELING_AFRAID_

Feeling bad about yourself – or that you are a failure of have let yourself or family down?

FEELING_BAD_ABOUT_YOURSELF_

FEELING_DOWN_OR_DEPRESSED

FEELING_NERVOUS_OR_ANXIOUS

FEELING_TIRED

GARDENING_DIY

Has COVID19 change the type of birth you feel you will have?

HAS_COVID_CHANGED_BIRTH

HEIGHT_IN_METRES

What is the highest level of education you have reached?

HIGHEST_EDUCATION

HOUSEWORK_CHILDCARE

0n a scale of 1 to 10, how stressful was this time  (1 is not at all, 10 is overwhelming)?

HW_STRESSFUL_WAS_THIS_TIME_1_IS_NOT_AT_ALL_10_IS_OVERWHELMING

LEGAL_OR_FINANCIAL_PROBLEMS

Little interest or pleasure in doing things?

LITTLE_INTEREST_OR_PLEASURE

Have you experienced low mood during your pregnancy?

LOW_MOOD

Moving or speaking so slowly that other people could have noticed? Or the opposite – being so fidgety or restless that you have been moving around a lot more than usual?

MOVING_SLOWLY

NATIONALITY

Thoughts that you would be better off dead, or of hurting yourself in some way?

NEGATIVE_THOUGHTS

NUMBER_OF_CHILDREN

Now you are pregnant, how many alcoholic drinks do you drink on a typical day when you are drinking?

NUMBER_OF_DRINKS

NUMBER_OF_PEOPLE_IN_HOME

OCCUPATION_

OTHER_CHILDREN

Physical exercise such as swimming, jogging, aerobics, football, tennis, gym workout etc.

PHYSICAL_ACTIVITIES

Please tell us the type and amount of physical activity involved in your work

PHYSICAL_ACTIVITY_WORK

PLANNING_TO_FEED_YOUR_BABY

POOR_APPETITE_OR_OVEREATING

any serious relationship difficulties with your husband or partner or separated or divorced?

RELATIONSHIP_STATUS

Being so restless that it is hard to sit still?

RESTLESS

I feel satisfied with the support and care I have received in my pregnancy from my health care team (1 is strongly disagree, 5 is strongly agree)

SATISFIED_WITH_CARE_1_IS_STRONGLY_DISAGREE_5_IS_STRONGLY_AGREE

Sexuality. 1-	Heterosexual or straight
2-	Homosexual or lesbian
3-	Bisexual
4-	Prefer not to say
5-	Other

SEXUALITY

SOMEONE_CLOSE_WITH_A_SERIOUS_ILLNESS

START_TIME

SYSTEM_ID_E

What is the number that best describes your TOTAL household income BEFORE TAX?

TOTAL_HOUSEHOLD_INCOME_BEFORE_TAX_

Trouble concentrating on things, such as reading the newspaper or watching television?

TROUBLE_CONCENTRATING

TROUBLE_RELAXING

Trouble falling or staying asleep, or sleeping too much

TROUBLE_SLEEPING

What type of maternity care are you receiving now?

TYPE_OF_MATERNITY_CARE

were you or someone close to you a victim of violence or crime?

VICTIM_OF_VIOLENCE_OR_CRIME

Walking, including walking to work, shopping, for pleasure etc.

WALKING

How would you describe your usual walking pace?  Please mark one box only.

WALKING_PACE

WEIGHT_IN_KG

Do you work. "Working hours
1-	Full time
2-	Fixed regular hours part-time
3-	Variable hours part-time
4-	When required with no guarantee of hours
5-	Other"

WORK_TYPE

Not being able to stop or control worrying?

WORRYING

Worrying too much about different things?

WORRYING_TOO_MUCH

Anonymised Linking Field (ALF), Encrypted. This field is derived from by double encryption after splitting demographic information and clinical information; the first encryption occurs in Digital Health and Care Wales (DHCW), and the second in SAIL. If the NHS number is not supplied in the data extract, then matching methods are applied; please refer to ALF_MTCH_PCT.

ALF_E

WECC4_ALF_20221216

Anonymised Linked Field Match Percentage. This number is a match % score from probabalistic matching, when joining together anonymised data. This linkage process consists of matching against the Welsh Demographic Service by NHS number, where a valid number exists, and where there is no valid number then matching is attempted using first name, surname, date of birth, and postcode. This is an artificial score with no real-world meaning; i.e. a match of .99 does not mean there is a 99% chance the match is correct. This number is assigned when deriving the Encrypted Anonymised Linking Field.

ALF_MTCH_PCT

Status code assigned when deriving the Encrypted Anonymised Linking Field.

ALF_STS_CD

COMPLETION_DATE

EXTRACT_DT

FIELD_2

FIELD_3

FIELD_4

This is the sex (gender) of person, employee or patient. Can potentially be different from gender identity as stated/assigned at birth.

GNDR_CD

The 2011 code [different from 2001] for the Local Super Output Area [LSOA] of residence; this is a code created and maintained by Office for National Statistics. Not to be confused with LSOA name or other LSOA fields. 1909 LSOAs exist in Wales (2011 data); these have a minimum population of 1000, and a max population of 3000. The minimum number of households is 400, and the maximum number of households is 1200. If these thresholds are breached, then LSOAs are either split or merged; however this is uncommon.

LSOA2011_CD

The date the extract file was processed by the matching and anonymisation algorithm.

PROCESSED_DATE

The date of the Monday that occurs prior, or on, the actual date of birth. Access to this data item is limited, however, as it can be used to calculate age at specific events. Possible errors in extract may include patients with events and event dates before WOB.

A national population-based birth cohort study in Wales designed to investigate how health, lifestyle, and socio-economic factors during pregnancy and early infancy influence long-term childhood development, education, and wellbeing.

Born in Wales Survey (BIWS)

Documentation

Coverage

Spatial

Temporal

Provenance

Access and Governance

Usage

Access

Format and Standards

Observations

Origin