Version: 1.0.0 | Published: 15 Apr 2026 | Updated: 0 days ago
Summary
Documentation
Description:
The Brain Health Data Pilot (BHDP) project aims to be a shared database (like a library) of information for scientists studying brain health, especially for diseases like dementia, which affects about 900,000 people in the UK. Its main feature is a huge collection of brain images linked to routinely collected health records, both from NHS Scotland, which will help scientists learn more about dementia and other brain diseases. What is special about this database is that it will get better over time – as scientists use it and add their discoveries, it becomes more valuable.
This is a subset of the Outpatient Appointment and Attendances (SMR00) dataset for use in the Brain Health Data Pilot (BHDP) project.
An SMR00 is generated for outpatients receiving care in the specialties listed when:
-they attend a medical consultant outpatient clinic;
-they meet with a consultant or senior member of his/her team out with an outpatient clinic session (including the patient's home).
-they attend a clinic run by a nurse or an AHP identified as the Health Care Professional Responsible for Care for that clinic and who has legal and clinical responsibility for that patient.
The dataset is generally fully complete and ready for analysis three month preceding the current date. So for example at the end of August, data is available until the end of May.
In Pipeline:
Not available
Coverage
Spatial:
- United Kingdom
- Scotland
Typical Age Range Min:
0
Typical Age Range Max:
150
Material Type:
None/not available
Follow Up:
Other
Pathway:
All of secondary care in relation to appointments and attendances
Provenance
Origin
Purpose:
Care
Dataset Type:
Health and disease
Dataset Sub-Type:
Not applicable
Source:
EPR
Collection Source:
Secondary care - Outpatients
Image Contrast:
Not stated
Temporal
Publishing Frequency:
Static
Distribution Release Date:
17 June 2014
Start Date:
01 January 2000
End Date:
09 May 2024
Time Lag:
Not applicable
Accessibility
Access
Access Service:
Scottish National Safe Haven / Trusted Research Environment:
https://publichealthscotland.scot/services/data-research-and-innovation-services/electronic-data-research-and-innovation-service-edris/national-safe-haven-nsh/
Brain Health Data Pilot Study
Access Request Cost:
Delivery Lead Time:
Variable
Data Controller:
Public Health Scotland
Data Processor:
National Services Scotland
Jurisdiction:
United Kingdom of Great Britain and Northern Ireland
Usage
Data Use Limitation:
Research-specific restrictions
Data Use Requirements:
- Collaboration required
- Geographical restrictions
- Institution-specific restrictions
- Not for profit use
Resource Creator:
- National Services Scotland
- Public Health Scotland
Format and Standards
Vocabulary Encoding Scheme:
- NHS SCOTLAND NATIONAL CODES
- OTHER
Conforms To:
OTHER
Language:
English
Format:
Other
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Events
Number of Records
11206149
Count
17 June 2026
Persons
Outpatient admissions
820959
Count
17 June 2026