Version: 1.0.0 | Published: 15 Apr 2026 | Updated: 0 days ago
Summary
Documentation
Associated Media:
Description:
The Brain Health Data Pilot (BHDP) project aims to be a shared database (like a library) of information for scientists studying brain health, especially for diseases like dementia, which affects about 900,000 people in the UK. Its main feature is a huge collection of brain images linked to routinely collected health records, both from NHS Scotland, which will help scientists learn more about dementia and other brain diseases. What is special about this database is that it will get better over time – as scientists use it and add their discoveries, it becomes more valuable.
This is a subset of the Scottish Cancer Registry (SMR06) dataset for use in the Brain Health Data Pilot (BHDP) project.
The registry began in 1958 collecting personal, demographic and diagnosis information (such as site, histology, behaviour, histological confirmation and hospital of diagnosis) from cancer patients. In 1997, a new electronic cancer recording system was launched and at this point the registry was extended to include extra information on tumour stage (for breast, cervical and colorectal cancer), tumour grade and treatment information. A wide variety of geographical data is also included in the dataset including Scottish Index of Multiple Deprivation and Carstairs measures, census output area, NHS Board, Electoral Ward and Parliamentary constituency.
In Pipeline:
Not available
Coverage
Spatial:
- United Kingdom
- Scotland
Typical Age Range Min:
0
Typical Age Range Max:
150
Material Type:
None/not available
Follow Up:
Other
Provenance
Origin
Purpose:
Care
Dataset Type:
Health and disease
Dataset Sub-Type:
Not applicable
Source:
EPR
Collection Source:
- Clinic
- Primary care - Clinic
- Secondary care - Outpatients
- Secondary care - In-patients
Image Contrast:
Not stated
Temporal
Publishing Frequency:
Static
Distribution Release Date:
17 June 2024
Start Date:
01 January 2001
End Date:
09 May 2024
Time Lag:
Not applicable
Accessibility
Access
Access Service:
Scottish National Safe Haven / Trusted Research Environment:
https://publichealthscotland.scot/services/data-research-and-innovation-services/electronic-data-research-and-innovation-service-edris/national-safe-haven-nsh/
Brain Health Data Pilot Study
Access Request Cost:
Delivery Lead Time:
Variable
Data Controller:
Public Health Scotland
Data Processor:
National Services Scotland
Jurisdiction:
Great Britain
Usage
Data Use Limitation:
Research-specific restrictions
Data Use Requirements:
- Collaboration required
- Geographical restrictions
- Institution-specific restrictions
- Not for profit use
Resource Creator:
- National Services Scotland
- Public Health Scotland
Format and Standards
Vocabulary Encoding Scheme:
- NHS SCOTLAND NATIONAL CODES
- OTHER
Conforms To:
OTHER
Language:
English
Format:
text/csv
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Events
Number of Records
290452
Count
09 May 2024
Persons
People in dataset
219396
Count
09 May 2024