Version: 1.0.0 | Published: 15 Apr 2026 | Updated: 0 days ago
Summary
Documentation
Associated Media:
Description:
The registry began in 1958 collecting personal, demographic and diagnosis information (such as site, histology, behaviour, histological confirmation and hospital of diagnosis) from cancer patients. In 1997, a new electronic cancer recording system was launched and at this point the registry was extended to include extra information on tumour stage (for breast, cervical and colorectal cancer), tumour grade and treatment information. A wide variety of geographical data is also included in the dataset including Scottish Index of Multiple Deprivation and Carstairs measures, census output area, NHS Board, Electoral Ward and Parliamentary constituency.
In Pipeline:
Available
Coverage
Spatial:
- United Kingdom
- Scotland
Typical Age Range Min:
0
Typical Age Range Max:
150
Material Type:
None/not available
Provenance
Origin
Dataset Type:
Health and disease
Dataset Sub-Type:
Not applicable
Image Contrast:
Not stated
Temporal
Publishing Frequency:
Annual
Distribution Release Date:
01 September 2020
Start Date:
01 January 1981
Time Lag:
More than 6 months
Accessibility
Access
Access Service Category:
TRE/SDE
Access Service:
Scottish National Safe Haven / Trusted Research Environment:
https://publichealthscotland.scot/services/data-research-and-innovation-services/electronic-data-research-and-innovation-service-edris/national-safe-haven-nsh/
Access Request Cost:
Delivery Lead Time:
Variable
Data Controller:
Public Health Scotland
Data Processor:
National Services Scotland
Jurisdiction:
Great Britain
Usage
Data Use Limitation:
General research use
Resource Creator:
Public Health Scotland
Format and Standards
Vocabulary Encoding Scheme:
NHS SCOTLAND NATIONAL CODES
Conforms To:
OMOP
Language:
English
Format:
- text
- csv
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Events
Episodes
1090594
Count
16 January 2021