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Version: 10.0.4 | Published: 23 Jul 2026 | Updated: 24 days ago
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Scottish Cancer Registry - Scottish Morbidity Record (SMR06) - Research Data Access Pathway subset

Dataset

Summary

Population Size:
5500000
Publication Date:
31 March 2025
Contact Point:
phs.edris@phs.scot

Documentation

Associated Media:
https://publichealthscotland.scot/media/39133/2026-06-cancer-registry-data-definitions-v1.pdf
Description:
The registry began in 1958 collecting personal, demographic and diagnosis information (such as site, histology, behaviour, histological confirmation and hospital of diagnosis) from cancer patients. In 1997, a new electronic cancer recording system was launched and at this point the registry was extended to include extra information on tumour stage (for breast, cervical and colorectal cancer), tumour grade and treatment information. The dataset also includes geographical data.
In Pipeline:
Available

Coverage

Spatial:
  • United Kingdom
  • Scotland
Typical Age Range Min:
0
Typical Age Range Max:
150
Material Type:
None/not available
Follow Up:
Other

Provenance

Origin

Purpose:
Care
Dataset Type:
Health and disease
Dataset Sub-Type:
Not applicable
Source:
EPR
Collection Source:
  • Primary care - Referrals
  • Primary care - Clinic
  • Secondary care - Outpatients
  • Secondary care - In-patients
Image Contrast:
No

Temporal

Publishing Frequency:
Annual
Distribution Release Date:
31 March 2025
Start Date:
01 January 1981
End Date:
31 March 2025
Time Lag:
More than 6 months

Accessibility

Access

Access Rights:
https://publichealthscotland.scot/services/data-research-and-innovation-services/electronic-data-research-and-innovation-service-edris/services-we-offer/
Access Service Category:
TRE/SDE
Access Service:
Scottish National Safe Haven / Trusted Research Environment: https://publichealthscotland.scot/services/data-research-and-innovation-services/electronic-data-research-and-innovation-service-edris/national-safe-haven-nsh/
Access Request Cost:
https://publichealthscotland.scot/services/data-research-and-innovation-services/electronic-data-research-and-innovation-service-edris/cost-of-services/
Delivery Lead Time:
Variable
Data Controller:
Public Health Scotland
Data Processor:
National Services Scotland
Jurisdiction:
Great Britain

Usage

Data Use Limitation:
  • General research use
  • Project-specific restrictions
  • Research-specific restrictions
Data Use Requirements:
  • Disclosure control
  • Institution-specific restrictions
  • Not for profit use
Resource Creator:
Public Health Scotland

Format and Standards

Vocabulary Encoding Scheme:
NHS SCOTLAND NATIONAL CODES
Conforms To:
NHS SCOTLAND DATA DICTIONARY
Language:
English
Format:
  • text
  • csv

Enrichment and Linkage

Derived From

PID
Title
URL
Scottish Cancer Registry (SMR06)
https://publichealthscotland.scot/resources-and-tools/health-intelligence-and-data-management/national-data-catalogue/national-datasets/search-the-datasets/scottish-cancer-registry-smr06/

Linkable Datasets

PID
Title
URL
This dataset can be linked to others within the Research Data Access Pathway

Observations

Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Events
Episodes
1090594
Count
16 January 2021

Origin

Name:
Scottish Government
URL:
https://www.researchdata.scot/metadata-catalogue
Link:
https://www.researchdata.scot/metadata-catalogue/search-results/result/?id=2425&originId=0