Version: 1.0.0 | Published: 8 Oct 2024 | Updated: 464 days ago
SAIL Dementia e-Cohort (SDEC)
Dataset
Summary
Citation:
CITATION INCOMPLETE
Documentation
Description:
The SAIL Dementia e-Cohort is a population-based electronic cohort (e-cohort) containing health-related information on people with and without diagnosed dementia.
By applying coding algorithms to linked routinely-collected datasets, a novel Dementia Platform UK (DPUK) cohort was developed to maximise generalisability and utility for a broad range of research questions and methodologies. It aims to minimise duplication of effort, increase reproducibility, reduce costs, and allow a broader range of researchers to apply to use SAIL data.
Coverage
Spatial
Spatial Coverage:
United Kingdom,Wales
Temporal
Start Date:
01 March 2019
End Date:
26 January 2021
Frequency:
Monthly
Distribution Release Date:
26 January 2021
Provenance
Source:
EPR
Collection Situation:
Clinic, Primary care - Clinic, Secondary care - Outpatients, Secondary care -
In-patients
Access and Governance
Usage
Condition of Access:
- General research use
- Research-specific restrictions
Condition of Use:
- Project-specific restrictions
- User-specific restriction
Resource Creator:
Derived dataset by HDR UK team at Swansea University
Access
Access Service:
The SAIL Databank is powered by the UK Secure e-Research Platform (UKSeRP). Following approval through safeguard processes, access to project-specific data within the secure environment is permitted using two-factor authentication.
Jurisdictions:
GB
Data Controller:
SAIL Databank
Access Request Cost:
Data provision is free from SAIL. Overall project costing depends on the number
of people that require access to the SAIL Gateway, the activities that SAIL
needs to complete (e.g. loading non-standard datasets), data refreshes,
analytical work required, disclosure control process, and special case
technological requirements.
Data Processor:
SAIL Databank
Format and Standards
Languages:
en
Formats:
SQL database table
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Events
Approx 70-80% coverage of Welsh population through GP registrations.
3000000
Count
31 August 2021
Origin
Name:
SAIL Databank (Wales)