Version: 1.0.0 | Published: 8 Oct 2024 | Updated: 464 days ago
Brecon Dataset (BREC)
Dataset
Summary
Citation:
CITATION INCOMPLETE
Documentation
Description:
A register of children diagnosed with type 1 diabetes in Wales, collected from Paediatric diabetes clinics in Wales. Maintained by the Brecon Group. Two capture-recapture studies have been done showing >97% completeness for type 1 diabetes diagnoses in Wales. Data has been collected since 1995 and is complete since then, but some people diagnosed earlier are also included.
Coverage
Spatial
Spatial Coverage:
United Kingdom,Wales
Temporal
Start Date:
05 June 1979
End Date:
18 April 2021
Frequency:
Annual
Provenance
Source:
EPR
Collection Situation:
Clinic
Access and Governance
Usage
Condition of Access:
General research use
Condition of Use:
- Project-specific restrictions
- Time limit on use
- User-specific restriction
Resource Creator:
["Brecon Group"]
Access
Access Service:
The SAIL Databank is powered by the UK Secure e-Research Platform (UKSeRP). Following approval through safeguard processes, access to project-specific data within the secure environment is permitted using two-factor authentication.
Jurisdictions:
GB
Data Controller:
Brecon Group
Access Request Cost:
Data provision is free from SAIL. Overall project costing depends on the number
of people that require access to the SAIL Gateway, the activities that SAIL
needs to complete (e.g. loading non-standard datasets), data refreshes,
analytical work required, disclosure control process, and special case
technological requirements.
Data Processor:
SAIL Databank
Format and Standards
Languages:
en
Formats:
SQL database table
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Events
Approx 70-80% coverage of Welsh population through GP registrations.
3000000
Count
31 August 2021
Origin
Name:
SAIL Databank (Wales)