SAIL Dementia e-Cohort (SDEC)
Dataset
Summary
Citation:
CITATION INCOMPLETE
Documentation
Description:
The SAIL Dementia e-Cohort is a population-based electronic cohort (e-cohort) containing health-related information on people with and without diagnosed dementia.
By applying coding algorithms to linked routinely-collected datasets, a novel Dementia Platform UK (DPUK) cohort was developed to maximise generalisability and utility for a broad range of research questions and methodologies. It aims to minimise duplication of effort, increase reproducibility, reduce costs, and allow a broader range of researchers to apply to use SAIL data.
Coverage
Spatial:
United Kingdom,Wales
Typical Age Range:
18-150
Follow Up:
1 - 10 YEARS
Pathway:
Primary care
Provenance
Origin
Sources:
EPR
Temporal
Accrual Periodicity:
MONTHLY
Distribution Release Date:
26 January 2021
Start Date:
01 March 2019
End Date:
26 January 2021
Time Lag:
OTHER
Accessibility
Access
Access Service:
The SAIL Databank is powered by the UK Secure e-Research Platform (UKSeRP).
Following approval through safeguard processes, access to project-specific data
within the secure environment is permitted using two-factor authentication.
Access Request Cost:
Data provision is free from SAIL. Overall project costing depends on the number
of people that require access to the SAIL Gateway, the activities that SAIL
needs to complete (e.g. loading non-standard datasets), data refreshes,
analytical work required, disclosure control process, and special case
technological requirements.
Jurisdictions:
GB
Data Controller:
SAIL Databank
Data Processor:
SAIL Databank
Usage
Resource Creators:
Derived dataset by HDR UK team at Swansea University
Format and Standards
Vocabulary Encoding Schemes:
LOCAL
Conforms To:
LOCAL
Languages:
en
Formats:
SQL database table
Enrichment and Linkage
Qualified Relations:
ALL
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
EVENTS
Approx 70-80% coverage of Welsh population through GP registrations.
3000000
Count
01 September 2021
Origin
Name:
SAIL Databank (Wales)