Welsh Cancer Intelligence and Surveillance Unit (WCSU)
Dataset
Summary
Citation:
CITATION INCOMPLETE
Documentation
Associated Media:
Description:
The Welsh Cancer Intelligence & Surveillance Unit (WCISU) is the National Cancer Registry for Wales and its primary role is to record, store and report on all incidence of cancer for the resident population of Wales wherever they are treated. Cancer registration in Wales began almost five decades ago and today’s electronic database which holds records going back to 1972 contains in the region of 686,000 records.
WCISU collects data about occurrences of cancer in Welsh residents via direct or indirect submissions from Welsh Hospitals.
Staging of malignant melanoma (ICD 10 code C43), breast (C50), colorectal (C18-C20) and cervix (C53) started in 2001 since this was when we started receiving pathological information. Staging for all other cancers started in 2010.
Treatment information started in 1995.
Coverage
Spatial:
United Kingdom,Wales
Typical Age Range:
0-150
Follow Up:
UNKNOWN
Pathway:
All pathways about cancer
Provenance
Origin
Sources:
EPR
Collection Situations:
PRIMARY CARE
Temporal
Accrual Periodicity:
ANNUAL
Distribution Release Date:
31 May 2019
Start Date:
01 January 1994
End Date:
04 February 2021
Time Lag:
1-2 MONTHS
Accessibility
Access
Access Service:
The SAIL Databank is powered by the UK Secure e-Research Platform (UKSeRP).
Following approval through safeguard processes, access to project-specific data
within the secure environment is permitted using two-factor authentication.
Access Request Cost:
Data provision is free from SAIL. Overall project costing depends on the number
of people that require access to the SAIL Gateway, the activities that SAIL
needs to complete (e.g. loading non-standard datasets), data refreshes,
analytical work required, disclosure control process, and special case
technological requirements.
Jurisdictions:
GB
Data Controller:
NHS Wales’ Informatics Service (NWIS)
Data Processor:
SAIL Databank
Usage
Data Use Requirements:
PROJECT SPECIFIC RESTRICTIONS
Resource Creators:
Welsh Cancer Intelligence & Surveillance Unit (WCISU) which is a part of Public Health Wales (PHW)
Format and Standards
Vocabulary Encoding Schemes:
LOCAL
Conforms To:
LOCAL
Languages:
en
Formats:
SQL database table
Enrichment and Linkage
Qualified Relations:
Yes. To any SAIL and & reference data.
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
EVENTS
The Welsh Cancer Intelligence & Surveillance Unit (WCISU) is the National Cancer Registry for Wales and its primary role is to record, store and report on all incidence of cancer for the resident population of Wales wherever they are treated.
714794
COUNT
20 July 2021