Version: 1.0.0 | Published: 8 Oct 2024 | Updated: 233 days ago
DataLoch Respiratory
Dataset
Summary
Citation:
CITATION INCOMPLETE
Documentation
Description:
DataLoch has collaborated with the BREATHE Health Data Research Hub and others at Health Data Research UK (HDRUK) to create a respiratory-related database of South-East Scotland residents (NHS Lothian) with chronic respiratory conditions, specifically Asthma, Chronic Obstructive Pulmonary Disease (COPD) and Interstitial Lung Disease (ILD). DataLoch"s respiratory registry is one of three related registries alongside others in England (Clinical Practice Research Datalink (CPRD) Aurum) and Wales (Secure Anonymised Information Linkage Databank (SAIL)). In addition to these conditions, the DataLoch respiratory registry includes Cystic Fibrosis (CF) and Wheeze (a common respiratory symptom).
This database of respiratory patients also contains research-ready data related to these patients" demographics, diagnoses, condition events, measurements and medications, expertly curated with clinical input and as much harmonisation as possible across the different UK registries using methodology in a soon-to-be-published paper. The data is presented in tables where each dataset has had its data chosen and derived from multiple sources and ran against algorithms to remove the noise from the raw data.
Coverage
Spatial
Spatial Coverage:
- United Kingdom
- United Kingdom,Scotland
- United Kingdom,Scotland,City of Edinburgh
- United Kingdom,Scotland,Midlothian
- United Kingdom,Scotland,East Lothian
- United Kingdom,Scotland,West Lothian
Temporal
Start Date:
01 January 2004
Frequency:
Other
Provenance
Source:
EPR
Purpose:
Disease registry
Collection Situation:
Primary care - Clinic, Secondary care - In-patients, Secondary care -
Outpatients
Access and Governance
Usage
Condition of Access:
Project-specific restrictions
Condition of Use:
- Ethics approval required
- Disclosure control
- Project-specific restrictions
Resource Creator:
DataLoch
Access
Access Rights:
Jurisdictions:
- GB-SCT
- GB-GBN
Data Controller:
NHS Lothian
Access Request Cost:
Data Processor:
University of Edinburgh
Format and Standards
Languages:
en
Formats:
text/tsv
Observations
Statistical Population
Population Description
Population Size
Measured Property
Observation Date
Persons
Patients with ILD in DataLoch Respiratory
23700
Count
18 May 2023
Persons
Patients with Cystic Fibrosis in DataLoch Respiratory
400
Count
18 May 2023
Persons
Patients with Asthma in DataLoch Respiratory
177700
Count
18 May 2023
Persons
Patients with Wheeze in DataLoch Respiratory
39500
Count
18 May 2023
Persons
Patients with COPD in DataLoch Respiratory
55200
Count
18 May 2023
Origin
Name:
Scottish Health Data